Contact
Prader-Willi Syndrome Association Germany e.V.
The Prader-Willi Syndrome Association Germany e.V. (PWSVD) is an association for people with PWS and their relatives and today has more than 750 members nationwide. In addition to an office in Cologne, the PWSVD organises member support in regional groups in many federal states. Founded in November 1991, we have made it our goal, in accordance with our statutes, to inform the public about PWS and its treatment options.
We support people seeking advice in all situations and support projects to improve therapeutic measures. The PWSVD takes measures to support these goals. In addition, we promote the construction and maintenance of residential groups and facilities for people with PWS. If you need advice in your search for a suitable place to stay, our housing working group will be happy to help.
Prader-Willi Syndrome Association Germany e.V.
The Prader-Willi Syndrome Association Germany e.V. (PWSVD) is an association for people with PWS and their relatives and today has more than 750 members nationwide. In addition to an office in Cologne, the PWSVD organises member support in regional groups in many federal states. Founded in November 1991, we have made it our goal, in accordance with our statutes, to inform the public about PWS and its treatment options.
We support people seeking advice in all situations and support projects to improve therapeutic measures. The PWSVD takes measures to support these goals. In addition, we promote the construction and maintenance of residential groups and facilities for people with PWS. If you need advice in your search for a suitable place to stay, our housing working group will be happy to help.
Vorstand
Vorstandsvorsitzende
Ansprechpartner:
Inga Koenen
Kleinkinder / Internet-Forum
Ansprechpartner:
Kathrin Altenhoff
Kreftenscheerstr.120
45472 Mülheim an der Ruhr
Tel.: 0208/8219030
Ansprechpartner:
Dieter Bertges
Annemarie-Gossmann-Str. 34G
65207 Wiesbaden
Tel.: 0611/509726
Ansprechpartner:
Dr. Volker Holzkämper
Am Brückenhorst 2a
29227 Celle
Tel.: 05141 / 3 64 52
Ansprechpartner:
Jutta Rohde
Ansprechpartner:
Ulrich Priester
Banater Str.4
67065 Ludwigshafen
Tel.: 06 21 / 53 18 98
Ansprechpartner:
Christoph Tomecki
Tel.: 0170/7563296
Landesgruppenleiter
Ansprechpartner:
Andrea Wiechert
Ansprechpartner:
Andrea Wiechert
Ansprechpartner:
Gabriele Flohr, Günter Oefelein
Königsbacher Zeile 16a
13465 Berlin
Tel.: 030 40636273
Ansprechpartner:
Christian und Sandra Brill
Ansprechpartner:
Susanne Matzke
Ansprechpartner:
Birgit Hermann
Ansprechpartner:
Anke Großheim
Ansprechpartner:
Ulrike Marschner
Ansprechpartner:
Peter Tischer